A "PHR" is a Personal Health Record.  PHRs can collect and store official records, labs, tests, and claims data directly deposited by providers.  They can also store other health-related data such as heart rate, glucose levels, medications, allergies, exercise habits, lifestyle, sexual history, personal notes and other data you create.

The term 'PHR' implies you control this type of electronic health record - because its 'personal,' it's yours.  But that is simply not true of all PHRs.

How much control do you really have?

Think twice about who you allow to see, use, or control your most sensitive, personal health records, from DNA to prescriptions. Patient Privacy Rights (PPR) did our best to decode PHR privacy policies and spell out what control you have over your information.  PPR makes no recommendations on specific PHRs.  The Report Card is our opinion based on the information available on these companies' websites.

Interesting review from the Patient Privacy Rights (nonprofit) organization [1].

Spoiler: the current PHR offerings reviewed don't fare too well.

[1] "Patient Privacy Rights (PPR) works to empower individuals and prevent widespread discrimination based on health information using a grassroots, community organizing approach. We educate consumers, champion smart policies and expose and hold industry and the government accountable."